Well hello!

Hello everyone~

I know it’s been several days since my last blog and I apologize for that. Thursday I spent the day with my amazing mom. She went to the movies and did a little shopping. Of course I was wearing my mask around town. Not taking any chances of getting a bug. There is some pretty nasty stuff going around, and the last place I want to be is back in the hospital!! But it was so nice to spend some time with my mom. We are very close, and memories we make together are extra special. I love her to pieces!

Yesterday I worked on a few projects around the house, laundry you know the fun stuff that never ends! Ha ha. I then had to do a sleep study test last night. That was the first time I’ve ever had to do this type of study. Not going to lie it was a little on the weird side. They hook up a million (well not really but it sure feels like it) electrodes all over your head, face, chest and legs. They have you crawl into bed and try to sleep while lying on your back. They are looking to see if you have some type of sleep apnea, restless leg syndrome or if you snore during the night. I fell asleep around 11:00 and was woke up at 5:30 this morning. I think I slept maybe two or three hours it felt like. I came home and crashed for a few hours on the couch. A sleep specialist will read my report and then let Dr. Chakraborty know within two weeks. So we will just wait and see what the report shows.

My sleep technician was a former respiratory therapist at University of Arizona at Tucson. So of course we chatted up a storm. She was very familiar with Cystic Fibrosis, which is generally uncommon in this area. So we struck up a long conversation. She also worked with CF patients post double lung transplant. She asked me a really great question. She asked “are you scared to have your transplant?” My initial answer was “heck yes!!!” But the more I thought about it as the night went on, I honestly believe I am more excited than anything. Don’t get my wrong I am scared to death to go through this surgery. Being cut from arm pit to arm pit under the breast line, have your sternum broke, and then opened up like a clam shell. Who wouldn’t be scared!!! But then on the flip side, not being tied to breathing machines and oxygen tanks all day long sounds so amazing to me! Most of all being able to laugh again with my friends and family without coughing up a lung or gasping for air sounds more appealing to me than anything in the world right now. It was a great question. Definitely got me thinking, that’s for sure.

Tonight our great friends Ken and Jennifer Wood invited us up to their house for dinner and a glass of wine. Was sure nice to sit and visit with them that doesn’t happen too often with just the four of us. Love those kind of moments! 🙂

Tomorrow is my moms birthday, she turns 29 again! Ha ha. Kerry and I are taking her to dinner and the movies. Should be a great day! My dad hasn’t been feeling well so he won’t be joining us. :(. Hopefully he will be back to himself in no time. But for now my therapy is complete for the evening, tube feeds are calling my name!

Until next time……

~Jen~